Health Improvement Scotland – Information Booklets

The first of the three patient information booklets, from the guideline Assessment, diagnosis and interventions for autism spectrum disorders, for adults going through the diagnosis process, or who may already have been diagnosed with autism spectrum disorder (ASD) has been published by Health Improvement Scotland.  It explains the recommendations in the guideline about:

  • diagnosis
  • approaches that can help after diagnosis
  • the care people are likely to get and can expect

The booklet will also be of interest to partners, friends, family, carers and employers.

Please click here to access the booklet, where it can also be downloaded for free.

If you would like to order any copies of this booklet, please email ( ) the number of copies you would like and the full delivery address, including postcode.  Paper copies of the booklet are free to all residents living in Scotland.

The booklets for young people will be available in January 2017 and the one for parents and carers will be available in February.

West Lothian Council – Autism Strategy Survey

At the end of 2015 the Scottish Government set out four key areas that will help improve the quality of life for people with autism, their families and the wider community. The four key areas are:


A Healthy Life     Choice & Control      Independence     Active Citizenship


West Lothian Council and its partners (NHS, Police Scotland, West Lothian College and Voluntary Sector etc.) are keen to review their local Autism Strategy and want to make sure the four key areas are included.

To help them make sure they get this right in West Lothian they need your views and would kindly ask you to complete the survey by clicking on the link below.


Who is this survey for?

  • Children, young people and adults who have a diagnosis of autism
  • Parent, carers and other family members of individuals who have a diagnosis of autism
  • Individuals, professionals, volunteers etc. who work with or come into contact with individuals who have a diagnosis of autism

The survey should take you about 15 – 20 minutes to complete and a separate survey should be completed for each person who wants to give their views for example a parent and a child (2 surveys).   To do this simply complete once and then when finished click on the link again.

All information gathered through this survey will be held confidentially by West Lothian Council, you do not have to give your name so individuals cannot be identified.

West Lothian Council expect a report on the key results of the survey to be produces in February 2017 and this will be made widely available.   The outcome of this survey will help them inform the West Lothian Autism Strategy Action Plan and help them to identify the areas they need to prioritise.

If you have any other questions about this survey please contact:


Thank you in advance for your support.

Research Associate Post – Universities of Edinburgh, Durham and Warwick

Applications are invited for a new Research Associate post (0.5 FTE, fixed term 22 month contract) to work on a psychology research project exploring the role of family relationships in outcomes for children with rare genetic intellectual disability syndromes. Little is known about how family characteristics and relationships affect outcomes for children with rare genetic intellectual disability syndromes or how the children’s characteristics and behaviour affect parents’ wellbeing and sibling adjustment. The proposed research uses a range of quantitative methods to explore these issues. There is a particular focus on families with a child with Williams syndrome.


The project is funded by the Baily Thomas Charitable Fund and you will join a research team from the Universities of Edinburgh, Durham and Warwick. You will be based in the Moray House School of Education, University of Edinburgh. This post offers the opportunity to work with established researchers, to build a strong research profile through peer-review publications, and to impact positively on the lives of children and young people with intellectual disability and their families.


Informal enquiries should be made to


Closing Date: 9th January 2017



For further info see:


Vacancy Ref: : 038363

Places still available at the upcoming seminar on ‘Sexual health, relationships and well-being of adults with a learning disability’

A small number of places are still available at the upcoming seminar on ‘Sexual health, relationships and well-being of adults with a learning disability’.


Thursday 15th December 9.30 – 4.00pm
Thistle Hall, Lynebank Hospital, Halbeath Road, Dunfermline


The programme is available at the following link:


To book your place, send an email to

What is supported decision-making? New good practice guide from the Mental Welfare Comission

The Mental Welfare Commission for Scotland has published a new good practice guide on supported decision-making.


The guide was produced for the Commission by Jill Stavert, Professor of Law at Napier University and sets out why supported decision-making is an important concept.


It explains how adults with mental illness (including dementia), learning disabilities and other related conditions, who may have difficulty making decisions, can be supported to ensure that decisions made, by or about them, genuinely reflect their choices.


You can read the new MWC good practice guide on supported decision making here.